Unnoticed. Unmistakable.
This is what living with a mast cell disease can look like, unnoticed by most, unmistakable to the person living it.
Awareness Day. 20 october.
One Day. Every Story. Unmistakable.
Mast cell diseases can go unnoticed by almost everyone, and still be unmistakable to the person living with it. On 20 October, people living with a mast cell disease, their families and their advocates come together from around the world to change that, sharing real stories so what’s invisible to most becomes impossible to miss.
This year, we’re asking you to help make it unmistakable too. Learn how.
About mast cell diseases
A mast cell disease can look different for everyone, but these 3 things tend to stay the same.
Often invisible
Symptoms can be easy to miss, or often mistaken for something else.
Years, not days
Because symptoms overlap with so many other conditions, many people are misdiagnosed for years.
Whole-body impact
Can affect the skin, gut, heart and nervous system, often all at once.
Get involved
Help us raise awareness on Mastocytosis & Mast Cell Diseases Awareness Day
Resources available in 10 languages
Sophie
Australia
Waltraud
Germany
“I have been living with a mast cell disease since I was four years old.”
Filomena
Portugal
“I have been living with a mast cell disease since I was four years old.”
Filomena
Portugal
“I have been living with a mast cell disease since I was four years old.”
Filomena
Portugal
“I have been living with a mast cell disease since I was four years old.”
Filomena
Portugal
“I have been living with a mast cell disease since I was four years old.”
Maria Elena
- Italy
Julie
- America
Filomena
- Portugal
What is a Mast Cell Disease?
Learn more about mast cell diseases, such as mastocytosis, mast cell activation syndrome (MCAS) and symptomatic hereditary alpha tryptasemia (HaT), via the resource links.
Fact sheets
Five patient fact sheets, available in ten languages
View expert interviews
Three leading specialists share practical insights into mastocytosis, idiopathic MCA) and symptomatic HaT.
Survey results
Understanding life with mast cell diseases: view insights from our global community.
With thanks to
Our sponsors
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