The Mastocytes Support Association Romania
The Mastocytes Support Association Romania offers patients with mastocytosis or other mast cell diseases from Ukraine who take refuge in Romania free of charge:
- cromoglycate
- hospitalization in the National Center for Rare Hematological Diseases which is also the ECNM center within the Bucharest University Emergency Hospital
- specific treatment
- cromoglycate cream
- antihistamines
- special soap approved by the Ministry of Health ( Mastocytosis Support Association Romania sponsored a project that created a homemade soap, without NaOH caustic soda, without perfumes, the soap received the approval of the Ministry of Health and was used by children with other serious diseases: those with transplant, burns etc).
It also provides psychological support.
Contact: nike974@gmail.com, FB page Mastocytosis Support Association Romania, www.mastocitoza.ro
Other resources
Resources for refugees and displaced persons with rare diseases – provided by Orphanet
Information for people fleeing the war in Ukraine – European Commission
Swiss resources
Ukraine: Helpful information for people seeking protection – Swiss Refugee Council