Check our post on Lighting up for Mastocytosis & Mast Cell Diseases for RARE Revolution Magazine’s social media takeover on Rare Disease Day 2025.
Our community comes together in remarkable ways to shine a light on Mastocytosis and Mast Cell Diseases:
- Watch as buildings around the world glow in the colour purple, creating stunning visual reminders of our rare disease community.
- Our passionate patient advocacy groups organise walks, conferences, information sessions and fundraisers. Every event, big or small, helps spread understanding and support.
- Through social media campaigns, live streams and online and in-person events, we’re connecting.
Together, we’re turning awareness into action, one light, one post, one conversation at a time.
How do YOU raise awareness? Share your stories with us.