News
Awareness news& resources
Welcome to our news and resources section – a place to share the latest awareness campaigns, patient stories, research and global activities related to mast cell diseases. Here, you’ll find trusted information, support resources and inspiring initiatives that bring our international community closer together.
Knowledge that empowers and connects
Patient Survey: Closes 18 Sept 2025
RARE Revolution magazine® and the Mastocytosis & Mast Cell Diseases Awareness Day Committee are collaborating to gain a deeper understanding
RARE Rev-inar episode 019: Systemic mastocytosis: “Are we speaking the same language?”
Did you miss attending RARE Revolution Magazine’s special online conversation about Systemic Mastocytosis this week? Sponsored by Blueprint Medicines, the
Voices with borders: Interview
How a global network is elevating the voice of the mastocytosis (and MCAS and mast cell diseases) community RARE Revolution
Systemic Mastocytosis edition of RARE Revolution Magazine
Learn more about systemic mastocytosis (SM) in the latest spotlight edition of RARE Revolution Magazine, sponsored by Blueprint Medicines. Take
Find your local support organisation
Check our post on finding your local support organisation for RARE Revolution Magazine’s social media takeover on Rare Disease Day 2025.
Lighting up for Mastocytosis & Mast Cell Diseases
Check our post on Lighting up for Mastocytosis & Mast Cell Diseases for RARE Revolution Magazine’s social media takeover on