Patient stories
Behind every diagnosis is a personal story. Hear from people around the world living with mastocytosis, MCAS and other mast cell diseases as they share their experiences, challenges and the realities of living with conditions that are often unnoticed, but unmistakable.
Charlotte & Oliva
- UK
“Some days we're absolutely fine... and then it can go polar opposite.”
Silvia
- Argentina
"I was diagnosed with mastocytosis when I was 10 years old."
Luka
- America
"I'm unnoticed and I'm unmistakable."
Liam
- Australia
"Just because I look well on the outside does not mean I'm feeling well."
Claudia
- Chile
"This is real. This is happening."
Roseani
- Puerto Rico
“Even when we cannot see what someone is going through, we can always offer empathy, understanding, and support.”