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Silvia

  • Argentina

“I was diagnosed with mastocytosis when I was 10 years old.”

Unnoticeable. Unmistakable.

Silvia is 66 years old and lives in Buenos Aires, Argentina. She was diagnosed with mastocytosis at just 10 years old, in 1970, when very little was known about the disease and clinical experience was limited.

For more than five decades, Silvia has lived with the need to manage potential triggers, including sun exposure, insect stings and certain foods.

Over the years, antihistamines have become part of her ongoing treatment. Fortunately, she has avoided major incidents and has found healthcare professionals who have helped guide and support her health and wellbeing.

Silvia’s story highlights the importance of knowledgeable medical care and ongoing support for people living with mastocytosis.

Every story matters. Share yours.

Like Silvia, many people living with mastocytosis, MCAS and other mast cell diseases face challenges that others may not see or understand.

By sharing your experience, you can help raise awareness, build understanding and remind others that they are not alone.

Your story deserves to be heard.

Share Your Story

Other stories

Charlotte

Charlotte & Oliva

  • UK
“Some days we're absolutely fine... and then it can go polar opposite.”
Read story

Silvia

  • Argentina
"I was diagnosed with mastocytosis when I was 10 years old."
Read story

Luka

  • America
"I'm unnoticed and I'm unmistakable."
Read story

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